A multidisciplinary consensus for clinical care and research needs for Sturge-Weber syndrome
J Alejandro, AF Luat, C Juhász, ML Ho… - Pediatric …, 2018 - Elsevier
Abstract Background Sturge-Weber syndrome is a neurocutaneous disorder associated with
port-wine birthmark, leptomeningeal capillary malformations, and glaucoma. It is associated
with an unpredictable clinical course. Because of its rarity and complexity, many physicians
are unaware of the disease and its complications. A major focus moving ahead will be to
turn knowledge gaps and unmet needs into new research directions. Methods On October 1-
3, 2017, the Sturge-Weber Foundation assembled clinicians from the Clinical Care Network …
port-wine birthmark, leptomeningeal capillary malformations, and glaucoma. It is associated
with an unpredictable clinical course. Because of its rarity and complexity, many physicians
are unaware of the disease and its complications. A major focus moving ahead will be to
turn knowledge gaps and unmet needs into new research directions. Methods On October 1-
3, 2017, the Sturge-Weber Foundation assembled clinicians from the Clinical Care Network …
